Proud Member of Epilepsy Alliance America

Advocating, educating & inspiring across all stages of the epilepsy journey.

South Carolina Advocates For Epilepsy (S.A.F.E.) is the only statewide nonprofit epilepsy organization in South Carolina β€” serving the entire state with more than 500 members and 50 volunteers since 2011.

Donate Now

All funds raised and donated remain in South Carolina β€” supporting patients and families statewide.

1 in 26
People will be diagnosed
with epilepsy in their lifetime
1 in 10
People will have a single
seizure in their lifetime
55,000+
People in South Carolina
living with epilepsy
Since 2011
Serving SC's epilepsy
community statewide
500+
Members and growing
across the state

Join Us & Make a Difference

From awareness nights to support groups, there's always a way to get involved with S.A.F.E.

Nov12026

Purple United "1 in 26" Run/Walk

10K, 5K & Stroll at James Island County Park. Because 1 in 26 people will be diagnosed with epilepsy in their lifetime. Registration is open now!

πŸ“ James Island County Park Β· πŸ•— Starts 8:00 AM
Nov82026

Purple With A Purpose

Oyster Roast Β· BBQ Β· Live Music at Bohemian Bull. All you can eat oysters, BBQ & sides. $40 all ages, $15 kids 5–13.

πŸ“ Bohemian Bull, James Island, SC Β· πŸ•“ 4–7 PM

Advocate Β· Educate Β· Inspire

πŸ’œ Advocate

We stand up for epilepsy patients, their families, and caregivers β€” at the state house, in schools, and across communities. S.A.F.E. helped pass legislation requiring all SC school staff to be trained on seizure response.

πŸ“– Educate

We provide seizure recognition and response training, on-demand learning, and community resources that help people from all walks of life understand epilepsy β€” because awareness saves lives.

🌟 Inspire

Through support groups, warrior spotlights, events, and one-on-one connections, we empower patients, families, caregivers, and students to make a difference.

Virtual Support Groups β€” Free in 2026

Safe, welcoming spaces held quarterly at 7:00 PM. Patient group (ages 14+): Jan 20, Apr 21, Jul 21, Oct 20. Caregiver group: Jan 8, Apr 9, Jul 9, Oct 8.

Email to Join: info@scepilepsy.org

Supported By

Proud Member Of

Proud Member of Epilepsy Alliance America Seizure Action Plan Coalition β€” Awareness Partner

About S.A.F.E.

The only statewide nonprofit epilepsy organization in South Carolina β€” serving the entire state since 2011.

Meet Erick Gordon

Erick Gordon

"Epilepsy is the least interesting thing about me."

Erick Gordon is known for his heart, humor, determination, and deep compassion for others. He is an amazing listener who genuinely pays attention to the little details that matter most to people. Erick loves finding thoughtful, meaningful gifts for the people who are important to him, often remembering small things others may overlook. Those closest to him describe him as encouraging, resilient, kind-hearted, and someone who makes people feel seen, heard, and valued.

Erick has a passion for 80's music and enjoys collecting vinyl records. He also loves watching movies and is known for his incredible movie trivia knowledge. He is the proud owner of a classic 1966 Ford Mustang, which he has enjoyed restoring with his father. During football season, you can almost always find him cheering on the Georgia Bulldogs β€” from décor to collectibles, Erick has an extensive collection of Georgia Bulldogs football memorabilia that reflects his longtime love for the team.

More than anything, Erick is passionate about helping people facing epilepsy realize they are not alone. Whether someone is newly diagnosed, struggling to find seizure control, or has lived with epilepsy for decades, Erick believes hope and community matter. Through his work with S.A.F.E., he has dedicated himself to advocating, educating, and inspiring individuals and families throughout South Carolina and beyond.

Erick's Journey

Erick's journey with epilepsy began in March 2007 when he was diagnosed with refractory epilepsy. Since then, he has endured thousands of seizures and many difficult challenges. After medications failed to control his seizures and surgery was initially not an option, Erick chose to participate in a clinical trial for the NeuroPace RNS System. The treatment significantly reduced both the frequency and severity of his seizures and gave him renewed hope. Today, Erick proudly serves as a NeuroPace Ambassador, openly sharing his experiences to help others better understand advanced epilepsy treatment options.

Erick also participated in a clinical trial for Xcopri, continuing his commitment not only to improving his own quality of life, but also to advancing epilepsy research for future generations.

In 2012, Erick underwent a temporal lobectomy after his medical team determined he was finally eligible for epilepsy surgery. While he continues to live with seizures and his epilepsy is still not fully controlled, Erick continues to face every challenge with courage, perseverance, and an unwavering desire to help others on similar journeys.

At the center of S.A.F.E.

is someone who refuses to let epilepsy define who he is.

Erick at the ONE in 26 event Erick receiving his NeuroPace trial completion certificate Erick at a ketogenic cooking class Erick in his Georgia Bulldogs gear Erick at Hockey Heroes for Epilepsy

Our Story

South Carolina Advocates For Epilepsy (S.A.F.E.) was founded in 2011 with support from clinicians and researchers at Medical University of South Carolina after South Carolina was left without a statewide epilepsy nonprofit organization. Erick's journey, resilience, and passion to serve others became the inspiration behind S.A.F.E.'s mission to advocate, educate, and inspire the epilepsy community across the state.

Our Mission

S.A.F.E.’s mission is to advocate for people affected by epilepsy, educate communities through awareness and seizure recognition and response training, and inspire hope, inclusion, and action — creating a South Carolina where every person with epilepsy is supported, understood, and empowered to thrive.

Board of Directors

Dulaney (Laney) Wilson

Dulaney (Laney) Wilson

President

Has two family members with epilepsy and embraces S.A.F.E.'s mission to advocate, educate and inspire. She became active with S.A.F.E. in 2012 while conducting research on comorbidities of epilepsy in South Carolina.

Sara Perez

Sara Perez

Treasurer

Owner of SMP Financial Services, providing bookkeeping and financial systems support to small businesses and nonprofits. Sara's connection to epilepsy advocacy is personal β€” her daughter experienced her first seizure at age 11. A proud military spouse, her husband recently retired from the USMC after over 20 years of service. She lives in South Carolina with her husband and four children.

Angela Malek

Angela Malek

Board Member

Associate Professor in the Department of Public Health Sciences at the Medical University of South Carolina. She became involved with epidemiologic research in epilepsy in 2015, through which she met Karen St. Marie and began collaborating with S.A.F.E. Angela lives in Charleston, SC.

Karen St. Marie

Karen St. Marie

Founder & Executive Director

Founded S.A.F.E. in 2011 after her son Erick's diagnosis revealed a gap in South Carolina's epilepsy support services. Leads all operations, advocacy, and community outreach for the organization.

Kadeen Wiggins

Kadeen Wiggins

Board Member

Digital marketing and web strategy consultant, and founder of DC360 Consulting. Kadeen joined the board in 2026, leading S.A.F.E.’s website and digital presence to expand the organization’s reach across South Carolina.

Volunteers Make Our Mission Possible

At S.A.F.E., volunteers are the heart of everything we do. Whether we’re hosting educational programs, family events, fundraisers, or community outreach, our volunteers help create safe, welcoming, and memorable experiences for everyone.

Many of our volunteers are individuals and families who have been personally affected by epilepsy. Their passion and dedication inspire us every day, and we are incredibly grateful for the time they give to support our mission.

At the same time, we believe that our epilepsy families deserve the opportunity to simply enjoy these special moments together. Rather than working an event, they should be able to participate, make memories, connect with others, and focus on what matters most — their loved ones.

That’s why we are always looking for compassionate community volunteers willing to lend a helping hand. By volunteering your time, you’re doing more than assisting with an event — you’re giving a family affected by epilepsy the chance to experience it without worrying about logistics or responsibilities.

Whether you can volunteer for a few hours, serve on a committee, help behind the scenes, or support us throughout the year, your time truly makes a difference.

Why Volunteer with S.A.F.E.?

Make a meaningful difference in your community. Support South Carolina’s only statewide epilepsy nonprofit. Help create inclusive, accessible events. Allow families affected by epilepsy to participate instead of work. And meet amazing people who become part of the S.A.F.E. family.

Join Our Volunteer Team →

Partners & Sponsors

Upcoming Events

Join us for awareness events, fundraisers, support groups, and community gatherings across South Carolina.

Purple United 1 in 26 Run/Walk
November 1, 2026

Purple United "1 in 26" Run/Walk

Join us for a 10K, 5K, or Stroll to raise awareness and funds for the epilepsy community. Because 1 in 26 people will be diagnosed with epilepsy in their lifetime. All paces welcome β€” bring the family and even the stroller!

πŸ“ James Island County Park
871 Riverland Drive, James Island, SC 29412
πŸ•— Starts 8:00 AM

Register Now β†’
Purple With A Purpose
November 8, 2026

Purple With A Purpose

Oyster Roast Β· BBQ Β· Live Music at Bohemian Bull. All you can eat oysters, BBQ & sides. Try the "Purple Passion" specialty drink, available all month with a portion of sales donated back to S.A.F.E.

πŸ“ Bohemian Bull, James Island, SC
πŸ•“ 4–7 PM
🎟 $40 all ages Β· $15 kids 5–13 (by 11/7; $45 day of)

Buy Tickets β†’

Virtual Support Groups

Free, welcoming spaces held quarterly at 7:00 PM. Email info@scepilepsy.org to request the meeting link.

Patient Support Group

Patient Support Group

A safe space for people with epilepsy (ages 14 to adult) to share experiences, learn coping strategies, and find understanding.

2026 Dates: January 20, April 21, July 21, October 20

Request the Link β†’
Caregiver Support Group

Caregiver Support Group

For caregivers of all epilepsy patients β€” pediatric and adult. Find shared understanding, practical guidance, and empowerment through education.

2026 Dates: January 8, April 9, July 9, October 8

Request the Link β†’

Epilepsy Resources

Medical providers, community support, educational tools, and more β€” compiled for the SC epilepsy community.

πŸ“‹ Seizure Action Plans

Downloadable action plans from Epilepsy Alliance America β€” available in English and Spanish.

English PDF ↓EspaΓ±ol PDF ↓

Epilepsy Centers & Neurology Practices

πŸ₯

MUSC Epilepsy Center

The MUSC Health Comprehensive Epilepsy Center provides the most updated and complete care of seizures and epilepsy.

Visit MUSC Epilepsy Center β†’
πŸ₯

Prisma Health Neuroscience Associates β€” Upstate

Comprehensive care devoted to the diagnosis and treatment of neurology-related conditions.

Visit Prisma Upstate β†’
πŸ₯

Prisma Health USC Neurology β€” Midlands

Neurologists trained to help patients with epilepsy, headache, and other neurological disorders.

Visit Prisma Midlands β†’

Pediatric Epilepsy Care

🧸

MUSC Children's Epilepsy Center

Comprehensive pediatric epilepsy care at the Medical University of South Carolina.

Visit MUSC Children's β†’
πŸ₯

Prisma Health Pediatric Neurology

Specialized neurology care for children across the Prisma Health system.

Visit Prisma Pediatric Neurology β†’
πŸŽ—οΈ

Pediatric Epilepsy Surgery Alliance

Support and education for families considering or navigating epilepsy surgery.

Visit the Alliance β†’
πŸ”„

Transition of Care Resources

Guidance from Epilepsy Alliance America on moving from pediatric to adult care.

View Transition Resources β†’
🧠

Child Neurology Foundation

National resources and support for children living with neurologic conditions.

Visit the Foundation β†’

Community Organizations

🀝

Be the Change Charleston

Empowering individuals with disabilities through community connection and employment opportunities.

Visit Be the Change β†’
πŸš—

AccessAbility β€” Transportation

Transportation assistance throughout South Carolina for individuals with disabilities.

Visit AccessAbility β†’
🧠

Shepherd Center β€” Neuropsychology

Outpatient programs addressing memory issues and decreased cognitive skills.

Visit Shepherd Center β†’
πŸ‘¨β€πŸ‘©β€πŸ‘§

Family Connection of South Carolina

Connections, awareness, and inclusion for families with children who have a disability or special healthcare need.

Visit Family Connection β†’
🩺

Barrier Islands Free Medical Clinic

Free primary care for uninsured adults in the Lowcountry β€” treating diabetes, hypertension, depression, and more at no cost.

Visit BIFMC β†’
🀝

Family Resource Center for Disabilities and Special Needs

Charleston-based nonprofit promoting learning, inclusion, and empowerment through education, advocacy, and outreach.

Visit the FRC β†’

Resources for College Students with Epilepsy

πŸŽ“

College Planning Guide for Students with Learning Disabilities

Comprehensive guide on pursuing higher education with a learning disability.

Read the Planning Guide β†’
πŸ“–

College After Epilepsy Surgery

Personal journeys from college students following epilepsy surgery.

Read Their Stories β†’
🏠

How to Create a Sensory-Friendly Dorm

Tips on making your dorm a comfortable, accessible space.

Get Dorm Tips β†’
πŸ’‘

Seizure Safety & Information for College Students

Epilepsy Alliance America's hub for students heading to campus with epilepsy.

Visit the EAA Hub β†’
🧭

Seizure Prepared U

An EAA program helping colleges and universities become seizure-prepared campuses.

Explore Seizure Prepared U β†’
🩺

Nursing Career Guide for Students with Disabilities

How your compassion can lead to a rewarding career in nursing.

Read the Nursing Guide β†’

S.T.E.P.S. Doctor-Visit Discussion Guide

πŸ“

S.T.E.P.S. Guide β€” English

A discussion guide from SK Life Science covering seizures, treatment, emotional impact, personal goals, and safety β€” so you get the most from every doctor visit.

Download English PDF β†’
πŸ“

GuΓ­a S.T.E.P.S. β€” EspaΓ±ol

GuΓ­a de discusiΓ³n para pacientes con epilepsia β€” prepare su prΓ³xima visita al mΓ©dico.

Descargar PDF en EspaΓ±ol β†’

Programs & Services

β›Ί

Camp Rise Above

Camp programs for children living with epilepsy and other serious conditions.

Visit Camp Rise Above β†’
🧩

Self-Management Programs (MEW Network)

The Managing Epilepsy Well Network β€” evidence-based programs for living well with epilepsy.

Explore MEW Programs β†’
🧠

HOBSCOTCH

A one-on-one program that helps adults with epilepsy manage memory and attention challenges.

Learn About HOBSCOTCH β†’
πŸ’Š

Medication Cost Assistance

Help finding programs that lower the cost of epilepsy medications.

Get Cost Assistance β†’
🏫

Special Education Advocacy

Support for families navigating IEPs, 504 plans, and school services.

Get Advocacy Support β†’
πŸŽ“

Scholarships for People with Epilepsy

Scholarship opportunities for students living with epilepsy.

View Scholarships β†’
🀝

National Support Groups

Find additional support groups through Epilepsy Alliance America's national network.

Find a Group β†’

Living with Epilepsy

πŸ‘©

Women and Epilepsy

Health information for women β€” from hormones and pregnancy to menopause.

Read Women's Health Info β†’
πŸŽ–οΈ

Veterans and Epilepsy

Resources for veterans living with epilepsy and post-traumatic seizures.

View Veteran Resources β†’
πŸ“‹

Managing Your Medications

Practical guidance on staying on track with anti-seizure medications.

Get Medication Tips β†’
🌿

Self-Care for People with Epilepsy

Caring for your whole self β€” body, mind, and wellbeing.

Explore Self-Care β†’
πŸ’ž

Caregiver Self-Care

Because self-care isn't selfish β€” support and strategies for the people who care for others.

Caregiver Support β†’
🏷️

Disability Discounts for Kids & Adults

Discounts, deals, and freebies for kids and adults with disabilities.

View the Discounts Guide β†’

Employment

πŸ’Ό

Resume & Employment Guide for People with Disabilities

A comprehensive career guide by Jeff Arseneaux, Disability Employment Consultant.

Read the Career Guide β†’

Seizure Safety & Devices

πŸ†”

Seizure ID Program

Medical ID sleeves that alert first responders β€” an Epilepsy Alliance America program.

Get a Seizure ID β†’
⌚

Seizure Alert & Detection Devices

Movement monitors and alert devices β€” including assistance programs.

Explore Devices β†’
πŸ›Ÿ

Seizure Safety Tips

Books for Parents

  • 100 Questions & Answers about Epilepsy — Anuradha Singh, MD
  • Brainstorms: Epilepsy in Our Words (2008) — Steven C. Schachter, MD
  • Brainstorms Companion: Epilepsy in Our View (2008) — Steven C. Schachter, MD
  • Brainstorms Family: Epilepsy on Our Terms (2008) — Schachter, Montouris & Pellock
  • Changed By a Child (1997) — Barbara Gill
  • Childhood Epilepsies: Neuropsychological, Psychosocial, and Intervention Aspects (1989) — Hermann & Seidenberg
  • Children with Epilepsy: A Parent's Guide (1998) — Helen Reisner
  • Does Your Child Have Epilepsy? (1991) — Jan, Ziegler & Erba
  • Epilepsy: 199 Answers (2008) — Andrew N. Wilner, MD
  • Epilepsy: Patient and Family Guide (2008) — Orrin Devinsky, MD
  • Epilepsy in Children: What Every Parent Needs to Know (2015) — Devinsky, Conway & Glick
  • Good Morning Beautiful: Winning the Battle over Seizures (2010) — Paulette George
  • Growing up with Epilepsy (2003) — Lynn Bennett Blackburn, PhD
  • Keto Kid: Helping Your Child Succeed on the Ketogenic Diet (2006) — Deborah Ann Snyder, DO
  • Ketogenic Diets: Treatments for Epilepsy and Other Disorders (2011) — Kossoff, Freeman, Turner & Rubenstein
  • Missing Michael: A Mother's Story of Love, Epilepsy, and Perseverance (2005) — Mary Lou Connolly
  • Parents Guide β€” When the Seizures Don't Stop (2004) — Wolf & McGoldric
  • Psychogenic Non-Epileptic Seizures: A Guide (2014) — Lorna Myers, PhD
  • Seizures and Epilepsy in Childhood (2002) — Freeman, Vining & Pillas
  • The Spirit Catches You and You Fall Down (2007) — Anne Fadiman
  • Sudden Unexpected Death in Epilepsy: Continuing the Global Conversation (2011) — Chapman, Panelli, Hanna & Jeff, eds.
  • That's My Child: Strategies for Parents of Children with Disabilities (1996) — Lizanne Capper
  • What You Need to Know if Epilepsy Has Touched Your Life (2012) — Marcele Lancman, MD
  • Your Child and Epilepsy (1995) — Robert J. Gumnit, MD
  • Your Child Has a Disability (1998) — Mark L. Batshaw

Books for Teens

  • Brainstorms Family: Epilepsy on Our Terms (2008) — Schachter, Montouris & Pellock
  • Journey to Adulthood — Cleveland Clinic
  • Epilepsy: I Can Live With That! (1995) — Susan Wills Goss
  • Epilepsy: The Ultimate Teen Guide (2007) — Kathlyn Gay
  • Mighty Mike Bounces Back (2012) — Robert Skead & Mike Simmel
  • Self-Determination Strategies for Adolescents in Transition (1998) — Field, Hoffman & Spezia
  • Views from Our Shoes: Growing Up With a Brother or Sister with Special Needs (1997) — Donald Joseph Meyer

Books for Children

  • About Your Sleep Study — Gillette Children's Specialty Healthcare
  • Being Sara (2009) — Chris Passudetti
  • Chris Plays Basketball (2003) — Todd Filipps
  • Dotty the Dalmation has Epilepsy (1995)
  • Elena's EEG Adventure: A Coloring Book (2012) — Rochester ElectroMedical
  • Elena/Eddie Electro Dolls — Rochester ElectroMedical
  • Epilepsy Book for Kids (2012) — Layla Reid
  • Erica has a Problem: Epilepsy (1998) — Caren Mazure
  • The Great Katie Kate Explains Epilepsy (2014) — M. Maitland DeLand
  • Hi, My Name is Jack (2000) — Christina Beall-Suillivan
  • Karen's Epilepsy (2010) — Elizabeth Baltaro
  • Koko the Service Dog (2008) — Lisa Mink, MS
  • Lee the Rabbit with Epilepsy (1989) — Deborah M. Moss
  • Let's Learn with Teddy about Epilepsy (2008) — Dr. Yvonne Zelenka
  • Me and My World: All about Epilepsy (1989) — Epilepsy Foundation
  • MediKidz Explain Epilepsy (2013) — Chilman-Blair & deLoache
  • Mommy, I Feel Funny (2009) — Danielle M. Rocheford
  • My Friend Emily: A Story about Epilepsy and Friendship (1994) — Susanne M. Swanson
  • My Friend Matty: A Story about Living with Epilepsy (2005) — Debra & Richard Siravo
  • My Not-So-Secret Seizures (2019) — Devlin, PeΓ±a & Zonneveld
  • Sarah Jayne has Staring Moments (2012) — Kate Lambert
  • Sometimes I Get the Wiggles β€” Be an Epilepsy Seizure Hero (2016) — Andee Cooper
  • Straight Talk on Epilepsy: What Kids Need to Know (2006) — Epilepsy Foundation & Abbott
  • Taking Seizure Disorders to School (2001) — Kim Gosselin
  • Teagan's Story: Her Battle with Epilepsy (2011) — Talia Jager
  • Through His Eyes (2009) — Lisa M. Loiodice

Seizure Training

Help keep South Carolinians safe by learning seizure recognition and response. Available 24/7, free of charge.

General Seizure Recognition & Response

Epilepsy Alliance America's on-demand training is available 24/7. In just 45–50 minutes, gain the skills to recognize seizures and respond appropriately.

Who is it for? Families, caregivers, babysitters, teachers, co-workers. Available in English and Spanish.

Upon completion: Certificate provided. 1.0 CHES continuing education credit.

Start On-Demand Training β†’

Rutgers Seizure Recognition & Response Training

Developed for school personnel β€” teachers, administrators, nurses, drivers, coaches, aides. Covers the basics of epilepsy and how to recognize and respond to a seizure.

Start Rutgers Training β†’

Seizure Training for Law Enforcement Officers

Developed by Epilepsy Alliance America for law enforcement β€” helping officers recognize seizures, respond appropriately, and keep both the individual and the community safe during an encounter.

Start Law Enforcement Training β†’

Medication Training Videos

Training on rescue medications and therapies β€” available in English and Spanish.

DIASTAT (Diazepam Gel-rectal Administration)

English

EspaΓ±ol

VALTOCO (Diazepam Intranasal)

English β€” Currently Private

EspaΓ±ol β€” Currently Private

Nayzilam (Midazolam Intranasal)

English

EspaΓ±ol

VNS (Vagus Nerve Stimulation)

English

EspaΓ±ol

Lorazepam

English

EspaΓ±ol

Stories & Spotlights

Real stories from our community β€” warrior spotlights and expert insights on living with epilepsy.

Faces of Courage

Warrior Spotlight

Luci Anderson β€” Bishopville, SC

The ambulance was called to my middle school in March of 2012. They came for me after I had a seizure β€” I didn't even know what a seizure was.

Following having more than one seizure, in November of 2012, I was diagnosed with epilepsy. After trial and error of multiple medications, in 2018 I had a VNS implant. The following months of multiple tests and experiments of medications, I had a right frontal resection surgery β€” which only took 2–3 inches of my brain.

After a medication adjustment, I am almost 4 years seizure free.

Expert Insights

Got Sleep? The Do's and Don'ts of Restful Sleep

I frequently tell my patients and their care partners that sleep is one of the most important things we can do for ourselves. Of course, 'life' may get in the way of that β€” work, parenting, home responsibilities, social engagements.

Thanks to scientists hard at work in their labs, and the individuals willing to sacrifice sleep to be a part of research, we're learning just how crucially important sleep is. In the past decade, we've come to learn that sleep is critical for:

  • Allowing us to think clearly
  • Laying experiences down into long-term memory
  • Helping our bodies fight off illnesses
  • Making our moods more positive
  • Helping us to recover from neurological injury
  • Reducing seizure risk and slowing the progression of some dementias

Sleep and Brain Power

During sleep, our brains restore chemicals important for cognition (thinking skills). Currently, there is no 'magic pill' you can take to replenish these chemicals if you don't get enough shut-eye. Our brains use this chemical during sleep while they also practice memories repeatedly. The repetitive practice allows our brain cells to convert experiences and conversations into long-term memory storage. These are primary reasons that new moms, students burning the midnight oil to finish homework or projects, and others staying up late feel more distracted for one or more days after lost sleep. Getting the right amount of sleep will make us solve problems faster, recall information better, and be able to handle more information.

Sleep and Emotions

It's easy to see young children becoming cranky or wound-up when they're tired. However, fatigue and sleep deprivation affect adults just as much. Research has shown that depriving people of sleep leads them to interpret cues in their environment as being negative when they are not, making these individuals more sensitive, reactive or easily triggered, irritable, or angry. It's important to recognize that we trust our emotional response to things as realistic and appropriate, so if we are the sleep-deprived individual, we are unlikely to recognize that we are misinterpreting things or being irrational, reactive, or overly negative.

Another consequence of chronic inadequate sleep for some individuals is the experience of anxiety, depression, and other mental health illnesses. Unfortunately, this will only compound our reactivity as well as our ability to sleep, if our minds are too busy with worried or negative thoughts.

Sleep and Neurobiology

Many people who have epilepsy experience sleep deprivation as a trigger for their seizures. Then, after a seizure, you may find that you need more sleep. You are not alone.

Individuals who have suffered brain injuries, infections to the brain, and both small and large strokes are especially reliant on sleep to help the physical aspect of brain recovery. What's frightening is that millions of Americans will have a silent stroke in their lifetime β€” that is, a stroke that they're not overtly aware of, but that does impact either movement, thinking skills, emotions or behavior. Factors such as diabetes, hypertension, obesity, sleep apnea, and dehydration are frequent causes of these silent strokes. That means that we should all be focusing on getting good sleep.

More recently, we have come to learn that good sleep also clearly helps protect against dementias such as Alzheimer's disease, and that it slows the progression of movement disorders such as Parkinson's disease. This applies both to the sleep we obtain during our adulthood as well as the sleep we get once we've begun to show signs of neurological decline. That means that being a too-busy-to-sleep adult can increase your risk of dementia later. For individuals at-risk or clinically experiencing any neurological syndrome, sleep is one of the best β€” and cheapest β€” gifts we can give ourselves!

How Much Sleep Is Ideal?

It is difficult to answer how much sleep each person should obtain because everyone is different. Some rules of thumb can help you determine if you're getting enough sleep, though these are not 'hard and fast rules.' Ideally, if you're getting enough sleep, you should:

  • Awaken naturally at about the same time each day
  • Not have trouble getting out of bed in the morning
  • Not be cranky in the morning
  • Feel rested when you wake up
  • Not need to 'sleep in' on your day off β€” this is an important predictor!
  • Not doze off at inappropriate times, such as during conversations, interesting television programs, or meals
  • Not need naps or feel as if you run out of "brain power" later in the day

The need for a nap is less reliable of a rule, because as we get older, if we're falling ill, if we've had an unusually demanding day, or if we have certain neurological conditions, we are likely to need an afternoon rest break.

The amount of sleep that one needs in hours varies by age, medical condition, and genetics. Believe it or not, as we get older we typically need less sleep. You should not assume you're getting insufficient sleep because you're sleeping hours less than you did years ago. On the other hand, it's important to be aware that those of us getting a couple of hours too little sleep every night will lose awareness that our cognitive performance drops, usually about 1Β½ weeks into this chronic sleep deprivation. This is in contrast to blatantly sleep-deprived individuals, who experience that cognitive performance drop very soon.

Abrupt or unusual changes to our sleep quantity can give us information about our physical or emotional health. Many with epilepsy know that if they have seizures at night, they may awaken and then have trouble sleeping for one or more nights afterwards. Using a sleep tracking device such as a watch can help you or your loved ones monitor sleep patterns.

How Can We Get Better Sleep?

Individuals often think of taking a pill to help with sleep, but research is showing that "tranquilized sleep" does not necessarily lead to better cognition. Additionally, most sleep aids β€” including those with happy sheep, clouds, moons, and stars on the box β€” are not safe for the brain. Most sleep aids work by depleting the "cognition chemicals," which you read earlier need to be present at nighttime. Melatonin is a safe exception. Talk to your doctor before changing any sleep medication, and avoid alcohol prior to sleep, as it disrupts sleep cycles and can lead to early awakening.

Training your brain to fall asleep, to stay asleep, and to get better quality sleep can take time and practice, but it is possible for nearly everyone. The first step is to recognize that you need to commit to prioritizing sleep, even if it means making sacrifices or bringing in extra help. Follow these additional tips to help your sleep:

  1. Avoid caffeine after noon
  2. Turn a blue-light filter on for all of your electronic devices after sundown
  3. Have a set time to start your bedtime routine and to go to sleep, and a set time to wake up β€” it will take trial and error to figure out how much sleep you need
  4. Try melatonin (3, 5, or up to 10 mg) as part of your bedtime routine β€” up to 90 minutes before sleep
  5. Create a wind-down routine that you perform in about the same order every night: stretches, washing your face, reading a favorite passage, or meditating or praying
  6. Avoid difficult or emotionally-charged conversations β€” and upsetting programming β€” close to bedtime
  7. Use the bed only for bed-related activities; the bed is not the place for planning or worrying
  8. If you cannot sleep, don't just lay there β€” get up and do something meditative, boring, or fatiguing, like reading, coloring, or a sudoku puzzle (no blue-light devices)
  9. If you wake up with worries or ideas, write them on a notepad next to your bed and commit to tackling them tomorrow
  10. Try classical conditioning: build a 60–120 minute playlist of familiar, non-emotional music you can sing along to, played in the same order every night β€” over time, pressing play will cue your brain to sleep
  11. Sleep hypnosis tracks on YouTube can also help

Lastly, if you have sleep apnea, always use your treatment β€” even when napping β€” to protect your brain. If you have any questions, talk to your trusted doctor. Happy sleeping!

Symposium Highlight: Epilepsy Support Across Ages & Stages

At our February 1 symposium, keynote speaker Dr. Dan Snelgrove shared his journey as an epilepsy patient who became a clinician β€” now advocating for patients across South Carolina. We greatly appreciate his passion to make a difference for SC's epilepsy community.

Read Dr. Snelgrove's story at MUSC β†’

Connect with Us

Have questions, want to volunteer, or just want to say hello? We'd love to hear from you.

Send Us a Message

Get in Touch

πŸ“§

Email

karen@scepilepsy.org

info@scepilepsy.org

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Phone

(843) 991-7144

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Location

Goose Creek, SC 29445

Serving all of South Carolina

πŸ’œ

Karen St. Marie

Founder & Executive Director

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