Pharmaceutical Assistance:

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http://www.welvista.org/

  

http://www.pparx.org/    (Also provides information about low-cost or free clinics in your area!)

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Many other pharmacies also accept this card!  

See website for more information.

SUDEP Resources:


http://www.sudepaware.org/  SUDEP Aware


https://sudep.org/    SUDEP Action


http://csr.case.edu/   The Center for SUDEP Research


http://sudc.org/  Sudden Unexplained Death in Children Foundation


http://www.chelseahutchisonfoundation.org/  Chelsea Hutchison Foundation


http://www.dannydid.org/   Danny Did Foundation


http://patrickringfoundation.org/  Patrick Ring Foundation


http://www.emmabursick.org/  Emma Bursick Memorial Fund


http://www.epilepsy.com/get-help/about-sudep-institute   Epilepsy Foundation SUDEP Institute



Ketogenic Diet Resources:

http://ketohope.org/ - Keto Hope Foundation

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http://www.ketogenic-diet-resource.com/  ​Ketogenic Diet Resource


https://www.charliefoundation.org/    The Charlie Foundation for Ketogenic Therapies

​​National Resources:

https://www.gettinghired.com/   Website provides assistance for people with disabilities in finding employment​


https://www.benderconsult.com/   Employment consulting firm for people with disabilities


https://www.epilepsy.com/connect/forums/products-resources-helpful-links/free-legal-resources    Legal Resources


https://www.specialneedsalliance.org/  The Special Needs Alliance is a national organization comprised of attorneys committed to helping individuals with disabilities, their families and the professionals who serve them. 


https://ren.rti.org/     Rare Epilepsies Network


http://www.naec-epilepsy.org/  National Association of Epilepsy Centers


http://www.tsalliance.org/   Tuberous Sclerosis Alliance


https://www.aesnet.org/  American Epilepsy Society


http://www.cureepilepsy.org/home.asp   Citizens United for Research in Epilepsy


http://faces.med.nyu.edu/  Finding a Cure for Epilepsy and Seizures:  NYU Langone Medical Center


http://www.thecutesyndrome.com/    PCDH19 Epilepsy and SCN8A Epilepsy Research


http://www.dup15q.org/  Dup15q Alliance


http://www.ninds.nih.gov/  National Institue of Neurological Disorders and Stroke


http://www.cdc.gov/  Centers for Disease Control and Prevention


https://epilepsytalk.com/  Epilepsy Talk - News and Views


https://www.accreditedschoolsonline.org/   Go to resources tab in right corner, select SEE ALL GUIDES, 

                                                                     choose School Health & Safety, then scroll down to 

​                                                                      Student Guide to Managing Chronic Conditions at School


https://www.accreditedschoolsonline.org/resources/chronic-conditions-in-school/ - Guidebook to Managing Chronic

                                                                                                                                   Health Conditions in School


https://www.affordablecollegesonline.org/college-resource-center/resources-for-students-with-disabilities/ -

Student Resources for Individuals with Disabilities


https://www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities/ - Financial Assistance for Individuals with Disabilities


https://www.affordablecollegesonline.org/students-with-disabilities-careers/ - Career Guidebook for Disabled Students


https://www.accreditedschoolsonline.org/resources/best-accredited-colleges-schools-for-students-with-disabilities/ - Student Rights and Resources for Individuals with Disabilities


online.maryville.edu/disabilities-guide/  - College for Students with Disabilities: A Guide for Students, Families and Educators


https://online.maryville.edu/blog/career-guide-for-college-students-with-disabilities/  - Career Guide for College Students with Disabilities
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https://www.bestcolleges.com/resources/college-planning-with-physical-disabilities/  - Guide to College Planning for Physically Impaired Students

​Click on web address to visit actual site.

Online Certifications:


​http://www.onlinecprcertification.net/   American Academy of CPR and First Aid



Scholarship Information:


http://www.collegescholarships.org/health/epileptic-students.htm  College scholarship for epilepsy patients




Pediatric Resources:

http://www.ice-epilepsy.org/   Intractable Childhood Epilepsy


http://www.lgsfoundation.org/   Lennox-Gastaut Syndrome Foundation


http://www.hopeforhh.org/  Hope for Hypothalamic Hamartomas


http://www.dravetfoundation.org/   Dravet Syndrome Foundation


http://www.yellowpagesforkids.com/  Wrightslaw Yellow Pages for Kids with Disabilities


https://www.ssa.gov/pubs/EN-05-10026.pdf  Benefits for Children with Disabilities (SSI)








Pharmaceutical Companies and Medical Device Companies:


http://us.eisai.com/     Eisai Inc.


http://www.gwpharm.com/  GW Pharmaceuticals


https://www.livanova.cyberonics.com/  Liva Nova - previously known as Cyberonics (VNS Medical Device)


https://lundbeck.com/us  Lundbeck Pharmaceuticals


http://www.neuropace.com/  Neuropace (Responsive Neuro Stimulator)


http://www.sunovion.com/   Sunovion Pharmaceuticals


https://www.supernus.com/   Supernus Pharmaceuticals


http://www.ucb-usa.com/   UCB Pharmaceuticals


http://www.upsher-smith.com/  Upsher-Smith Pharmaceuticals


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Local Resources for Epilepsy Patients in South Carolina:


http://www.muschealth.org/neurosciences/services/epilepsy/index.html  ​MUSC Comprehensive Epilepsy Center


https://www.palmettohealth.org/medical-services/neuroscience  Palmetto Health Baptist, Columbia


http://www.ghschildrens.org/specialists/pediatric-neurology/ Greenville Health System Pediatric Neurology Services


https://www.ghs.org/neuroscience-associates/  Greenville Health System Neuroscience Associates


http://www.familyconnectionsc.org/   Family Connection of SC


http://patriciahomecare.com/​   Patricia Home Care - based in Columbia, SC


http://www.able-sc.org/   able south carolina  (independent living for all)


http://frcdsn.org/   Family Resource Center for Disabilities and Special Needs


https://www.couponchief.com/guides/savings_guide_for_those_with_disability  Coupon Chief - Retail Savings Guide

​           “CouponChief.com’s Retail Savings Guide for People with Disabilities provides a detailed look at ways those with disabilities can stretch their dollars. Discounts, services, and special offers are widely available, but very few businesses will mention their willingness to help simply because the risk of offending someone is just too big to risk saying something. Managing a disability

can be tough, but you don't have to handle it all by yourself. The bottom line is: if you can save money, why not do it?”


https://www.pandasc.org/   Protection & Advocacy for People with Disabilities Inc.


https://www.schac.sc.gov/   South Carolina Human Affairs Commission


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