Ketogenic Diet Resources:
http://ketohope.org/ - Keto Hope Foundation
http://www.ketogenic-diet-resource.com/ Ketogenic Diet Resource
https://www.charliefoundation.org/ The Charlie Foundation for Ketogenic Therapies
https://www.myketocal.com/ Nutricia KetoCal
Many other pharmacies also accept this card!
See website for more information.
The information contained on this resource page is provided only as general information, which may be incomplete or outdated. Please note that users of this website are responsible for independently verifying any and all information. The inclusion of links from this site does not imply endorsement or support of any of the linked information, services, products, or providers.
South Carolina Advocates For Epilepsy makes no effort to verify, or to exert any editorial control or influence over, information on pages outside of the "www.scepilepsy.org" domain.
Click on link to be taken directly to website.
Pharmaceutical Assistance:
http://www.pparx.org/ (Also provides information about low-cost or free clinics in your area!)
SUDEP Resources:
http://www.sudepaware.org/ SUDEP Aware
https://sudep.org/ SUDEP Action
http://csr.case.edu/ The Center for SUDEP Research
http://sudc.org/ Sudden Unexplained Death in Children Foundation
http://www.chelseahutchisonfoundation.org/ Chelsea Hutchison Foundation
http://www.dannydid.org/ Danny Did Foundation
http://patrickringfoundation.org/ Patrick Ring Foundation
http://www.emmabursick.org/ Emma Bursick Memorial Fund
http://www.epilepsy.com/get-help/about-sudep-institute Epilepsy Foundation SUDEP Institute
Pediatric Resources:
http://www.ice-epilepsy.org/ Intractable Childhood Epilepsy
http://www.lgsfoundation.org/ Lennox-Gastaut Syndrome Foundation
http://www.hopeforhh.org/ Hope for Hypothalamic Hamartomas
http://www.dravetfoundation.org/ Dravet Syndrome Foundation
http://www.yellowpagesforkids.com/ Wrightslaw Yellow Pages for Kids with Disabilities
https://www.ssa.gov/pubs/EN-05-10026.pdf Benefits for Children with Disabilities (SSI)
http://www.childneurologyfoundation.org/ Child Neurology Foundation
Online Certifications:
http://www.onlinecprcertification.net/ American Academy of CPR and First Aid
Scholarship Information:
https://www.ucbepilepsyscholarship.com/ $5000 and $10,000 scholarships
http://www.collegescholarships.org/health/epileptic-students.htm College scholarship for epilepsy patients
https://www.caring.com/caregivers/scholarships-for-student-caregivers Scholarships for student caregivers
https://www.nursingexplorer.com/scholarships Nursing and non-nursing scholarships
Various Topic Resources:
https://davidbuyshousesflorida.com/2019/05/27/home-ownership-for-people-with-disabilities/
This site will help readers who are disabled will have access to all Federal Programs available to them for buying a house in 2019.
They will understand the entire process of buying a home from start to finish.
They will have checklists for remodeling their home and access to all Federal Programs that assist them in the remodel.
Pharmaceutical Companies and Medical Device Companies:
http://us.eisai.com/ Eisai Inc.
http://www.gwpharm.com/ GW Pharmaceuticals
https://www.livanova.cyberonics.com/ Liva Nova - previously known as Cyberonics (VNS Medical Device)
https://lundbeck.com/us Lundbeck Pharmaceuticals
http://www.neuropace.com/ Neuropace (Responsive Neuro Stimulator)
http://www.sunovion.com/ Sunovion Pharmaceuticals
https://www.supernus.com/ Supernus Pharmaceuticals
http://www.ucb-usa.com/ UCB Pharmaceuticals
http://www.upsher-smith.com/ Upsher-Smith Pharmaceuticals
Local Resources for Epilepsy Patients in South Carolina:
http://www.muschealth.org/neurosciences/services/epilepsy/index.html MUSC Comprehensive Epilepsy Center
https://www.dreamcenterclinic.org/ Seacoast Church, offering neurology appointments for persons living in Hanahan, North Charleston and West Ashley, by appointment on the third Saturday of each month (8am-12pm). Also accepting referrals from all over South Carolina.
https://www.palmettohealth.org/medical-services/neuroscience Palmetto Health Baptist, Columbia
http://www.ghschildrens.org/specialists/pediatric-neurology/ Greenville Health System Pediatric Neurology Services
https://www.ghs.org/neuroscience-associates/ Greenville Health System Neuroscience Associates
http://www.familyconnectionsc.org/ Family Connection of SC
http://patriciahomecare.com/ Patricia Home Care - based in Columbia, SC
http://www.able-sc.org/ able south carolina (independent living for all)
http://frcdsn.org/ Family Resource Center for Disabilities and Special Needs
https://www.couponchief.com/guides/savings_guide_for_those_with_disability Coupon Chief - Retail Savings Guide
“CouponChief.com’s Retail Savings Guide for People with Disabilities provides a detailed look at ways those with disabilities can stretch their dollars. Discounts, services, and special offers are widely available, but very few businesses will mention their willingness to help simply because the risk of offending someone is just too big to risk saying something. Managing a disability
can be tough, but you don't have to handle it all by yourself. The bottom line is: if you can save money, why not do it?”
https://www.pandasc.org/ Protection & Advocacy for People with Disabilities Inc.
https://www.schac.sc.gov/ South Carolina Human Affairs Commission
National Resources:
https://www.tuck.com/epilepsy-and-sleep/ How patients with seizure disorders can get better sleep (Please copy/paste link)
https://www.benderconsult.com/ Employment consulting firm for people with disabilities
https://www.epilepsy.com/connect/forums/products-resources-helpful-links/free-legal-resources Legal Resources
https://www.specialneedsalliance.org/ The Special Needs Alliance is a national organization comprised of attorneys committed to helping individuals with disabilities, their families and the professionals who serve them.
https://ren.rti.org/ Rare Epilepsies Network
http://www.naec-epilepsy.org/ National Association of Epilepsy Centers
http://www.tsalliance.org/ Tuberous Sclerosis Alliance
https://www.aesnet.org/ American Epilepsy Society
https://www.cureepilepsy.org/ Citizens United for Research in Epilepsy
http://faces.med.nyu.edu/ Finding a Cure for Epilepsy and Seizures: NYU Langone Medical Center
http://www.thecutesyndrome.com/ PCDH19 Epilepsy and SCN8A Epilepsy Research
http://www.dup15q.org/ Dup15q Alliance
http://www.ninds.nih.gov/ National Institue of Neurological Disorders and Stroke
http://www.cdc.gov/ Centers for Disease Control and Prevention
https://epilepsytalk.com/ Epilepsy Talk - News and Views
https://www.accreditedschoolsonline.org/ Go to resources tab in right corner, select SEE ALL GUIDES,
choose School Health & Safety, then scroll down to
Student Guide to Managing Chronic Conditions at School
https://www.accreditedschoolsonline.org/resources/chronic-conditions-in-school/ - Guidebook to Managing Chronic
Health Conditions in School
Student Resources for Individuals with Disabilities
https://www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities/ - Financial Assistance for Individuals with Disabilities
https://www.affordablecollegesonline.org/students-with-disabilities-careers/ - Career Guidebook for Disabled Students
https://www.accreditedschoolsonline.org/resources/best-accredited-colleges-schools-for-students-with-disabilities/ - Student Rights and Resources for Individuals with Disabilities
online.maryville.edu/disabilities-guide/ - College for Students with Disabilities: A Guide for Students, Families and Educators
https://online.maryville.edu/blog/career-guide-for-college-students-with-disabilities/ - Career Guide for College Students with Disabilities
https://www.bestcolleges.com/resources/college-planning-with-physical-disabilities/ - Guide to College Planning for Physically Impaired Students
http://joshprovides.org/ Provides various services including seizure alert devices, seizure response dog program and more