RESOURCES

National Resources:

https://www.epilepsy.com/connect/forums/products-resources-helpful-links/free-legal-resources Legal Resources

https://www.specialneedsalliance.org/ The Special Needs Alliance is a national organization comprised of attorneys committed to helping individuals with disabilities, their families and the professionals who serve them.

https://ren.rti.org/ Rare Epilepsies Network

http://www.naec-epilepsy.org/ National Association of Epilepsy Centers

http://www.tsalliance.org/ Tuberous Sclerosis Alliance

https://www.aesnet.org/ American Epilepsy Society

http://www.cureepilepsy.org/home.asp Citizens United for Research in Epilepsy

http://faces.med.nyu.edu/ Finding a Cure for Epilepsy and Seizures: NYU Langone Medical Center

http://www.thecutesyndrome.com/ PCDH19 Epilepsy and SCN8A Epilepsy Research

http://www.dup15q.org/ Dup15q Alliance

http://www.ninds.nih.gov/ National Institue of Neurological Disorders and Stroke

http://www.cdc.gov/ Centers for Disease Control and Prevention

https://epilepsytalk.com/ Epilepsy Talk - News and Views

https://www.accreditedschoolsonline.org/ Go to resources tab in right corner, select SEE ALL GUIDES,

choose School Health & Safety, then scroll down to

Student Guide to Managing Chronic Conditions at School

https://www.accreditedschoolsonline.org/resources/chronic-conditions-in-school/ - Guidebook to Managing Chronic

Health Conditions in School

https://www.affordablecollegesonline.org/college-resource-center/resources-for-students-with-disabilities/ -

Student Resources for Individuals with Disabilities

https://www.affordablecollegesonline.org/college-resource-center/affordable-colleges-for-students-with-disabilities / - Financial Assistance for Individuals with Disabilities

https://www.affordablecollegesonline.org/students-with-disabilities-careers/ - Career Guidebook for Disabled Students

https://www.accreditedschoolsonline.org/resources/best-accredited-colleges-schools-for-students-with-disabilities/ - Student Rights and Resources for Individuals with Disabilities

online.maryville.edu/disabilities-guide/ - College for Students with Disabilities: A Guide for Students, Families and Educators

Click on web address to visit actual site.

Many other pharmacies also accept this card!

See website for more information.

Ketogenic Diet Resources:

http://www.ketogenic-diet-resource.com/ Ketogenic Diet Resource

https://www.charliefoundation.org/ The Charlie Foundation for Ketogenic Therapies

Pharmaceutical Assistance:

http://www.welvista.org/

http://www.pparx.org/ (Also provides information about low-cost or free clinics in your area!)

Pediatric Resources:

http://www.ice-epilepsy.org/ Intractable Childhood Epilepsy

http://www.lgsfoundation.org/ Lennox-Gastaut Syndrome Foundation

http://www.hopeforhh.org/ Hope for Hypothalamic Hamartomas

http://www.dravetfoundation.org/ Dravet Syndrome Foundation

Local Resources for Epilepsy Patients in South Carolina:

http://www.muschealth.org/neurosciences/services/epilepsy/index.html MUSC Comprehensive Epilepsy Center

https://www.ghs.org/healthcareservices/medicine/neurology/epilepsy/ Greenville Health System Neurology Services

http://www.familyconnectionsc.org/ Family Connection of SC

http://patriciahomecare.com/ Patricia Home Care - based in Columbia, SC

http://www.able-sc.org/ able south carolina (independent living for all)

http://frcdsn.org/ Family Resource Center for Disabilities and Special Needs

https://www.couponchief.com/guides/savings_guide_for_those_with_disability Coupon Chief - Retail Savings Guide

“CouponChief.com’s Retail Savings Guide for People with Disabilities provides a detailed look at ways those with disabilities can stretch their dollars. Discounts, services, and special offers are widely available, but very few businesses will mention their willingness to help simply because the risk of offending someone is just too big to risk saying something. Managing a disability

can be tough, but you don't have to handle it all by yourself. The bottom line is: if you can save money, why not do it?”

Pharmaceutical Companies and Medical Device Companies:

http://us.eisai.com/ Eisai Inc.

http://www.gwpharm.com/ GW Pharmaceuticals

https://www.livanova.cyberonics.com/ Liva Nova - previously known as Cyberonics (VNS Medical Device)

https://lundbeck.com/us Lundbeck Pharmaceuticals

http://www.neuropace.com/ Neuropace (Responsive Neuro Stimulator)

http://www.sunovion.com/ Sunovion Pharmaceuticals

https://www.supernus.com/ Supernus Pharmaceuticals

http://www.ucb-usa.com/ UCB Pharmaceuticals

http://www.upsher-smith.com/ Upsher-Smith Pharmaceuticals